The landlord of the Dolphin Inn, Mark Little, and 3 other hardy volunteers, will be taking on the challenge of kayaking across the English Channel from Dungeness to Boulogne in August to support a local lass, 4 year-old Elsie-Rose and SMA Type 1.
Elsie-Rose was diagnosed with Type I SMA (Spinal Muscular Atrophy) in September 2014, a condition that causes severe muscle weakness, and which can result in problems moving, eating, breathing and swallowing. Unfortunately, without intervention, most children with Type I SMA die within the first 2 years of life. However, the resilient Elsie-Rose strives to carry on just like any other 4 year old!
The Elsie-Rose & Friends Foundation was set up to provide help and financial support for families with disabled, sick, and terminally ill children and, after meeting Elsie-Rose and her family, Mark and friends decided to kayak across the English Channel with the aim of raising money for Elsie-Rose and the Foundation.
Consequently, they are seeking donations to their cause via Crowdfunding towards equipment Elsie-Rose may need in the future, and to give the Foundation funds it needs to support other families in need. Indeed, £350 has already been donated, including £250 from a kind anonymous donor! There will also be pots for donations and sponsor forms in the Dolphin Inn at 11-12 Rock-a-Nore Road, Hastings TN34 3DW.
If you wish to know more about Elsie-Rose, the Foundation and their campaign, you can go to their facebook page or twitter page. If you would like more details about SMA Type 1, go to the Spinal Muscular Atrophy website.
To help support this brave young lass and others, a donation either via Crowdfunding or by visiting the Dolphin Inn and making a pledge to support the team's kayaking challenge, or to add to the collection pots, would be gratefully received, many thanks.
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