Uke 'N' Party for Elsie-Rose!

 

I've talked about one of our ukulele bands Uke 'N' Party before (blog), well, on Monday they played in Rock-a-Nore Road, including up on the Stacey Marie (facebook page) with a wee bucket to support Mark et al and their cross Channel Kayak Challenge in aid of raising money for Elsie-Rose and the Elsie-Rose & Friends Foundation; see past blog for more information.

Elsie-Rose

 

They certainly were the centre of attraction whilst they played up on Stacey Marie, in front of the boat, and later on the balcony of the Dolphin Inn, strangers to Hastings looked a wee bit puzzled, but we all know Hastings likes to party and raises funds for charity like nowhere else!

 

Anyway, during their time entertaining anyone who wanted to stop and listen they raised £125.04 towards the Kayak Challenge, many thanks for their time and the entertainment they provided, cheers!

Indeed, if you would like further information, as I said above, a number of my blogs provide this, or you can go to Crowdfunding and make a donation, for which we would be extremely grateful, many thanks!



Planet Hastings Crazy Golf & British Championships 2018 AND

OK, a library photograph! 

If you want to play on the Pirate Golf, one of the 3 courses at Hastings Adventure Golf, this weekend (website), you may well have a problem, no, not snowfall! That's a library image of mine (pretty picture), however, there may well be some light rainfall this afternoon and tomorrow (Sunday) morning... Oh yes, back to the point, this weekend Hastings hosts the British Championships 2018 (website), so expect congestion or, more likely, the Pirate Golf course will be closed to non-competitors!

Talking about Planet Hastings Crazy Golf Club reminds me of the recent generous donation they gave to Mark Little, contributing towards his 4-person team and their crossing the English Channel by kayak challenge in 3 months time (August). They will be travelling from Dungeness to Boulogne (Mark et al, not the 2 Davids and Maz) in aid of raising funds for the Elsie-Rose & Friends Foundation.

Local lass, young Elsie-Rose, was diagnosed with Spinal Muscular Atrophy (SMA) Type 1 in September 2014, a condition that causes severe muscle weakness and results in problems with moving, swallowing, consequently eating, and breathing. Without appropriate intervention, most children with SMA Type 1 die within the first 2 years of their lives sadly. Thankfully, the resilient Elsie-Rose is determined to carry on and enjoy her family life just like other young children of her age!

Elsie-Rose

Because many of the expenses involved in supporting children with SMA Type 1 are not provided by the Department of Health, NHS, or local services, the Elsie-Rose & Friends Foundation was set up to provide help and financial support to families with disabled, sick and terminally ill children. After meeting Elsie-Rose and her family, Mark and his team decided that they would raise funds for Elsie-Rose and the Elsie-Rose & Friends Foundation by kayaking across the English Channel.

If you would like to know more about the Elsie-Rose & Friends Foundation you can go to their facebook page or twitter page. If you would like to read more information about SMA Type 1, go to the Spinal Muscular Atrophy Support UK website. 

If you would like to make a contribution towards supporting this courageous wee lass and the Elsie-Rose & Friends Foundation please make a donation via Crowdfunding. Or you could visit The Dolphin Inn, 11-12 Rock-a-Nore Road, Hastings TN34 3DW, and make a pledge to support the team's kayak challenge, and/or add to the collection box on the bar, indeed, all contributions would be very much appreciated, many thanks!

Elsie-Rose & Friends Foundation Fundraising Update.

Following Natasha Kelly's successful completion of the Hastings Half Marathon on Sunday and raising nearly £1,500 for the Elsie-Rose & Friends Foundation (blog), this is an update on how the fundraising is going for Mark Little and the 3 other volunteers in his team, who will be kayaking across the English Channel from Dungeness to Boulogne in August (blog). They will also be fundraising in support of the local 4 year-old with Type I SMA (Spinal Muscular Atrophy), Elsie-Rose, whose grandfather and other family members work in the local fishing industry, and the Elsie-Rose & Friends Foundation. 

Young Elsie-Rose was diagnosed with Type I SMA in September 2014, a condition that causes severe muscle weakness, and results in problems moving, eating, breathing and swallowing. Without intervention, most children with Type I SMA die within the first 2 years of life, however, the resilient Elsie-Rose strives to carry on and enjoy life just like all other 4 year olds, or more so! 

Because many of the expenses involved in supporting children with Type I SMA are not provided by the Department of Health or NHS, the Elsie-Rose & Friends Foundation was set up to help provide help and financial support to families with disabled, sick, and terminally ill children. After meeting Elsie-Rose and her family, Mark and his team decided to kayak across the English Channel with the aim of raising money for Elsie-Rose and the Foundation.  

Donations are being sought via Crowdfunding which will go towards necessary equipment for Elsie-Rose and her carers, and to contribute funds towards the Foundation so that it may support other families in need. So far £440 has been donated via Crowdfunding, many thanks! There is also a collection box for donations and sponsorship forms in the Dolphin Inn at 11-12 Rock-a-Nore Road, Hastings TN34 3DW. 

If you wish to know more about Elsie-Rose, the Elsie-Rose & Friends Foundation and their campaign, you can go to their facebook page or twitter page. If you would like more details about SMA Type 1, go to the Spinal Muscular Atrophy website. 

To make a contribution towards supporting this brave 4 year-old and other children with similar problems, please make a donation via Crowdfunding or go and visit the Dolphin Inn and make a pledge to support the team's kayaking challenge, or add to the collection box, indeed, all contributions are very gratefully received, many thanks!

Hastings Half Marathon 2018, Today's The Day!

Well, today's the day for the 34th Hastings Half Marathon (website), starting at 10.30 at Sea Road, by Grosvenor Gardens, St Leonards, and finishing there some time later, and the weather doesn't look to be this inviting...

Many runners will be raising money for various charitable causes, including Natasha Kelly (Elsie-Rose & Friends facebook page), who is running to raise money for the Elsie-Rose & Friends Foundation: see my recent blog about the kayaking event across the English Channel to raise money for Elsie-Rose and the Foundation, and which also gives information about Elsie-Rose and Type 1 SMA (Spinal Muscular Atrophy). I am supporting this event too, and here is a link to the Crowdfunding Page which has raised £420 so far towards the Foundation, many thanks to all who have contributed. All donations to either Natasha and her run, or Mark and his team and their channel crossing will be deeply appreciated, cheers!

For more details of the route and map and warm up advice go to the website.

My best wishes to Natasha, the Hastings Lifeboat runners raising money for many charities, and everyone else who bravely runs the Hastings Half Marathon today, and make sure you wrap up warm if you're a spectator!