Wednesday 18 April 2018

Planet Hastings Crazy Golf Club Donation


This is another update on how the fundraising is going for Mark Little and the 3 other volunteers in his team, who will be kayaking across the English Channel from Dungeness to Boulogne in August in support of Elsie-Rose and the Elsie-Rose & Friends Foundation. The two Davids and Maz today, ie the Planet Hastings Crazy Golf Club, donated £142 towards the cause on behalf of Elsie-Rose, many thanks!

Elsie-Rose was diagnosed with Type I SMA in September 2014, a condition that causes severe muscle weakness, and results in problems moving, eating, breathing and swallowing. Without intervention, most children with Type I SMA die within the first 2 years of life, however, the resilient Elsie-Rose strives to carry on and enjoy life just like all other young children! 

Because many of the expenses involved in supporting children with Type I SMA are not provided by the Department of Health or NHS, the Elsie-Rose & Friends Foundation was set up to help provide help and financial support to families with disabled, sick, and terminally ill children. After meeting Elsie-Rose and her family, Mark and his team decided to kayak across the English Channel with the aim of raising money for Elsie-Rose and the Foundation.

If you wish to know more about Elsie-Rose, the Elsie-Rose & Friends Foundation and their campaign, you can go to their facebook page or twitter page. If you would like more details about SMA Type 1, go to the Spinal Muscular Atrophy website.

To make a contribution towards supporting this brave young girl and others with similar problems, please make a donation via Crowdfunding or visit the Dolphin Inn and make a pledge to support the team's kayaking challenge, or add to the collection box, indeed, all contributions are very gratefully received, many thanks!

No comments:

Post a Comment