This
is another update on how the fundraising is going for Mark
Little
and the 3 other volunteers in his team, who will be kayaking across
the English Channel from Dungeness to Boulogne in August in support
of Elsie-Rose
and the Elsie-Rose
& Friends Foundation. The
two Davids and Maz today, ie the Planet
Hastings Crazy Golf Club,
donated £142 towards the cause on behalf of Elsie-Rose,
many thanks!
Elsie-Rose was
diagnosed with Type
I SMA
in September 2014, a condition that causes severe muscle weakness,
and results in problems moving, eating, breathing and
swallowing. Without intervention, most children with Type
I SMA die
within the first 2 years of life, however, the
resilient Elsie-Rose strives
to carry on and enjoy life just like all other young children!
Because
many of the expenses involved in supporting children with Type
I SMA
are not provided by the Department of Health or NHS, the Elsie-Rose
& Friends Foundation was
set up to help provide help and financial support to families with
disabled, sick, and terminally ill children. After
meeting Elsie-Rose and
her family, Mark and his team decided to kayak across the English
Channel with the aim of raising money for Elsie-Rose and
the Foundation.
If
you wish to know more about Elsie-Rose, the Elsie-Rose
& Friends Foundation and
their campaign, you can go to their facebook page or
twitter page.
If you would like more details about SMA
Type 1,
go to the Spinal
Muscular Atrophy website.
To
make a contribution towards supporting this brave young girl and
others with similar problems, please make a donation
via Crowdfunding or
visit the Dolphin
Inn and
make a pledge to support the team's kayaking challenge, or add to the
collection box, indeed, all contributions are very gratefully
received, many thanks!
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